Navigating a serious health diagnosis, like cancer, is emotionally demanding. Talking with your doctor or a counselor and reaching out support groups is essential to overcome the complexities of the cancer journey. ARCHANA JYOTI speaks with doctors to tell you more
For many individuals facing cancer, the emotional toll can be as daunting as the physical aspects of the disease. From the moment of diagnosis, feelings of fear, anxiety, and uncertainty often dominate one’s thoughts. Concerns about treatment outcomes, potential side effects, and the impact on daily life can intensify these emotions.
Needless to say, mental health plays a crucial role throughout the cancer journey. Research consistently shows that psychological well-being influences not only the quality of life but also the effectiveness of treatment and overall health outcomes. Support from family, friends, and healthcare providers is pivotal in managing these challenges.
"Counseling, therapy, and support groups offer safe spaces for individuals to express their emotions, address fears, and seek guidance on coping strategies. These interventions not only provide emotional support but also equip patients with tools to navigate the ups and downs of their cancer experience," assert oncologists and psychologists.
Infact, integrating mental health care into oncology settings is increasingly recognised as essential for comprehensive patient care. Studies show that when mental health services are embedded within cancer treatment teams, patients experience better outcomes. Integrated care ensures that mental health professionals collaborate closely with oncologists to address both physical and emotional needs, enhancing overall well-being and treatment adherence.
For survivors too, the journey continues beyond treatment completion. Adjusting to life after cancer involves navigating survivorship challenges, managing lingering emotional effects, and rebuilding physical and emotional strength. Support networks, survivorship programs, and ongoing mental health care play crucial roles in this phase, promoting long-term recovery and quality of life.
Dr Aditi Aggarwal, who serves as the Associate Director of Radiation Oncology at Max Institute of Cancer Care, highlights the increasing incidence of cancer globally. She acknowledges that scientific advances have significantly improved the effectiveness of cancer treatments, leading to higher cure rates. However, Dr. Aggarwal also underscores the importance of mental well-being alongside physical health in the context of cancer care. She points out that a cancer diagnosis brings with it a multitude of challenges, including uncertainty, loss of control, disruption of daily life, and emotional turmoil. Patients may experience anger, altered body image, and conflicts in relationships, which often remain unaddressed as medical treatment takes precedence.
“Each individual’s experience is unique, but with comprehensive support and compassionate care, navigating emotional well-being through cancer becomes a journey of healing, strength, and renewed purpose,” chips in Dr Rahul Bhargava, Director of Haematology, Paediatric Haematology Oncology and Bone Marrow Transplant at Fortis Gurgaon.
He says matter-of-factly: “When you first learn that you have cancer, it’s normal to feel as if your life is out of control. This could be because: you wonder if you’re going to live. Your normal routine is disrupted by doctor visits and treatments. People use medical terms that you don’t understand, you feel like you can’t do the things you enjoy and you feel helpless and lonely.”
A study from University of Pittsburgh researchers too finds that when mental health treatment is integrated into oncology care, patients are less likely to end up in the hospital.
The study, published in “The Lancet,” builds on previous research that shows a strong link between poor mental health and higher health care utilizations. The Pitt researchers had developed a treatment model in which cancer patients received mental health care from a therapist or social worker who was part of their oncology treatment team. This group was then compared to another set of patients who were referred out for therapy. Those who received the integrated mental health treatment were significantly less likely to visit the ER or be hospitalized.
The group that got integrated mental health treatment received cognitive behavioral therapy: they focused on relaxation techniques and changing core beliefs about themselves or their environments. This group reported lower rates of depression, fatigue, and pain when compared to patients who only received therapy referrals.
Researcher Steel says cancer centers should consider introducing this integrated model since unplanned medical care is more costly to both patients and health systems.
Another area where health care should focus is on patient’s commonly experiencing changes in mood during or after cancer treatment, says Dr Bhargava.
Says Dr. Arijit Bishnu, Associate Consultant, Hemato-Oncology and BMT,HCG EKO Cancer Centre, Kolkata, “Receiving a cancer diagnosis can be profoundly overwhelming, stirring fear of the unknown, apprehension about treatment and its side effects, and anxiety about the future. This emotional strain can be as taxing as the physical challenges posed by cancer itself. Conditions such as depression and anxiety not only degrade quality-of-life, they are associated with decreased rates of survival, possibly by impacting a patient’s ability to follow through with treatment.
Elaborating on strategies for navigating emotional well-being, Dr Bishnu adds, “Joining support groups allows patients to connect with others going through similar experiences. Sharing stories, tips, and encouragement can reduce feelings of isolation and provide emotional support.”
Practices such as meditation, yoga, and deep-breathing exercises can help manage stress and anxiety. These techniques promote relaxation and improve overall mental well-being, he asserts. “Exercise can release endorphins, which are natural mood lifters.”
Understanding the disease, treatment options, and potential side effects can reduce fear and anxiety. Knowledge empowers patients, making them feel more in control of their situation.
Leaning on loved ones for emotional support is vital. Open communication about fears and needs can strengthen relationships and provide a robust support network. Personalized care plans that consider the patient’s emotional state, the type of cancer, and the treatment regimen are essential. To help address psychosocial needs, cancer centres must employ clinicians such as psychiatrists and counsellors specializing in psychosocial care for people with cancer.
Dr. Aggarwal too advocates for the integration of counseling or simply having open discussions about the disease, patients' fears, anxieties, and thoughts from the outset of diagnosis. She believes that this proactive approach helps patients and their families better understand and cope with the situation, fostering acceptance and resilience throughout the treatment journey.
However, Dr. Aggarwal rues that current practices often fail to adequately address these psychological aspects. She stresses on the urgent need for integrating mental health services and counselors into cancer treatment protocols.
In the nutshell, doctors advice the parents that if diagnoised with the disease, however serious it may be, just remember that: You are not alone; many people experience emotional distress during cancer treatment; Seeking help is a sign of strength; There are resources and strategies available to support your mental health journey.
CANCER CARE COMPASSION
The concept of “healing touch" goes beyond physical care and encompasses holistic support that addresses the emotional, psychological, and even spiritual needs of cancer patients. Here are some ways in which a healing touch can be beneficial for cancer patients:
Emotional Support: Dealing with cancer can evoke a range of emotions, including fear, sadness, anger, and confusion. Compassionate care providers, counselors, and support groups can offer a safe space for patients to express these emotions, helping them to cope effectively.
Psychological Counseling: Professional counseling can provide cancer patients with strategies to manage stress, anxiety, and depression. Therapists trained in oncology support can help patients navigate their emotions, improve their coping mechanisms, and enhance their overall mental well-being.
Spiritual Care: For many patients, their spiritual beliefs and practices play a significant role in their healing journey. Spiritual caregivers or chaplains can offer comfort, provide spiritual guidance, and help patients find meaning and purpose during their illness.
Complementary Therapies: Techniques such as massage therapy, acupuncture, and yoga can complement medical treatments by promoting relaxation, reducing pain and fatigue, and improving overall quality of life.
Supportive Relationships: Family members, friends, and caregivers play a crucial role in providing emotional support to cancer patients. Their presence, understanding, and encouragement can make a significant difference in the patient's emotional resilience.
Educational Support: Empowering patients with knowledge about their diagnosis, treatment options, and possible side effects can alleviate fears and anxieties.
Holistic Care: Integrating mental health services into oncology care ensures that patients receive comprehensive support tailored to their individual needs. This approach not only addresses physical symptoms but also prioritizes emotional and psychological well-being.
