On the occasion of World Kidney Day (March 13), Sir Ganga Ram Hospital is going to launch an association to raise awareness about Polycystic Kidney Disease (PKD) among patients, public and the medical community.
The organisation will be named Polycystic Kidney Foundation of India. Polycystic Kidney Disease (PKD) Foundation Chairman Dr DS Rana said, “The foundation will raise awareness of PKD among patients, public and the medical community. It will provide information, advice and support to those affected. Through the foundation, genetic testing will be provided on complimentary basis and finances will be raised to fund research, he said.
According another member of Polycystic Kidney Disease foundation, “Polycystic Kidney Disease is the world’s most common inherited disorder. It is twice as common as multiple sclerosis and affects more people than muscular dystrophy — haemophilia, down syndrome and cystic fibrosis. Its frequency ranges from 1 in 800 to 1 in 1000 people.
Almost 10 lakh individuals in India have ADPKD (Autosomal Dominant Polycystic Kidney Disease).“This disease causes five per cent of end stage renal disease in India. If one of the parents has ADPKD there is a 50 percent chance that child will inherit the disease,” said the member.