The emotional toll of vitiligo in India

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India has the dubious distinction of having the highest prevalence of vitiligo in the world, estimated at 8.8 per cent (as against the global prevalence of 1 per cent-2 per cent). Every year, over 1 lakh cases of vitiligo are reported in India, and though the condition can occur at any age, it is more common before the age of 30.

In a world filled with beauty standards set by societal norms, one condition often becomes the subject of whispered conversations and hidden insecurities — Vitiligo. This chronic autoimmune condition, characterised by depigmented patches that appear when melanin-producing cells are destroyed, affects millions worldwide.

Beyond its Physical symptoms, Vitiligo patients face significant social stigma, impacting their mental health and relationships.

Meet Satya, a 28-year-old artist from the vibrant city of Jaipur who has been living with vitiligo since she was 12. “At first, I was a shy girl who tried to hide my skin,” she recalls. “I wore long sleeves, avoided swimming, or anything to cover up the patches.” The stigma associated with her condition was palpable, often leaving her feeling isolated and exposed to unwanted stares and comments, People often think it’s contagious or associate it with a lack of health, but they don’t understand the emotional toll it takes.

Farah’s story is not unique. Many with vitiligo experience harsh judgments and discomfort in their daily lives. Marriage prospects are affected especially in tier 2 cities and villages. Mental health issues such as anxiety and low self-esteem are common in Vitiligo patients.

The Dermatologist’s Perspective:

Vitiligo can significantly impact an individual’s self-esteem and mental well-being. While doctors focus on medical treatment. it’s essential to consider a holistic approach that includes emotional support. Treatment options: Several treatment options each tailored to fit the unique needs of the patient. These may include:

1. Topical Corticosteroids and Immunosuppressants like Pimecrolimus and Tacrolimus: These are commonly prescribed to reduce inflammation and encourage repigmentation in the affected area.

2. Phototherapy: Controlled exposure to ultraviolet B light can stimulate skin repigmentation In some patients.

3. Skin Grafts: In more severe cases, dermatologists may recommend surgical options such as skin grafting.

4. PRP therapy: Stimulates Pigment cells with new vessel formation at Vitiligo areas causing repigmentation.

5. Depigmentation Therapy: For those with widespread vitiligo, this involves lightening the unaffected skin to create an even tone.

However, Vitiligo treatment goes beyond just the skin. “We encourage patients to engage in counseling or support groups. The emotional experience of living with vitiligo is just as important as managing the physical symptoms.”

The Importance of Counseling

Counselling plays a critical role in coping with the psychological impact of vitiligo. Mental health professionals can help individuals develop coping strategies, improve self-acceptance, and reduce feelings of anxiety or depression associated with appearance.

Vitiligo is more than just a skin condition — it’s a deeply personal battle against stigma, isolation, and societal pressure. In India, where beauty standards remain rigid, those with vitiligo often face emotional trauma alongside physical symptoms.

While medical treatments offer hope, healing must include mental health support and social awareness.

It’s time we move beyond appearances and embrace inclusivity, ensuring that people like Satya and millions more — are seen, supported, and empowered to live without shame.

(The writer is a Board Certified Dermatologist MD, IFAAD, Indian Cancer Society, Mumbai. Views are personal)

Daily Pioneer
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