Seeing a child suffer is the worst nightmare for every parent and being unable to ease out the pain is much more difficult. The Indore-based Siddiki family is going through one such phase in their life as they observe their little girl suffer daily. Six years old little girl, AyraSiddiki suffers from the deadly clutches of Spinal Muscular Atrophy (SMA) Type 2. Currently, the Siddiki family is raising funds of INR 5 crores with the help of crowdfunding platform ImpactGuru.com for Ayra's treatment.
"Without this important medicine, my child will live a small life full of disabilities. Her spine will bend down completely, her digestive and heart muscles will eventually become weak. This fundraiser is our only hope to give her a normal life. Please contribute as much as you can on Ayra'sImpactGuru fundraiser. Help Ayra reach the finish line and receive her miracle medicine. The journey to Rs. 5 crores may be long but it is not an impossible one." appeals ShahnajBano Ayra's mother.
Ayra's parents started observing odd symptoms in Ayra as she couldn't crawl till the age of 1, however, the parents were relieved when the doctor stated it as delayed development which is observed in many children. As time passed, Ayra started growing weak with each increasing day which made Ayra's mother more concerned which eventually led to multiple series of tests on such a little soul. The final result was like a real heartbreak for the Siddiki family as it revealed that Ayra is suffering from Spinal Muscular Atrophy, a very rare disease that affects the motor functions of individuals.